00:00Really happy that you all joined me here today because I've really been thinking about this
00:09topic and it has me really thinking more deeply about our communities and the question is you
00:15know how do we talk about health within our communities making sure that health is a
00:20conversation that we're willing to have. I find that with my family health and health care decisions
00:27was really private just not something that we would talk about publicly. So I think information
00:33is power. So just like we share information around you know where we get our hair done or what books
00:39we're reading or just things that you know what schools we might be interested in for our kids
00:44when you share information you're sharing you know you're empowering each other and we should be
00:50normalizing it more. So it's interesting when I reflect on just growing up and the role health
00:56played in terms of how we engaged with each other interestingly we're very open about health
01:03and in particular as my parents got older it really I think was the linchpin for how we all had to get
01:11around the table to think about their health their health experiences how we advocate for them. It's
01:20another thing when you're now on the flip side and you are trying to navigate the health care system
01:26and you see how challenging and complicated it can be and so I think that is a microcosm of a lot of
01:34what families across the country are going through. Navigating the health care system openly talking about it
01:41and figuring out ways to get the right answers to make informed decisions. Yeah we do have to advocate
01:46more and being present with our family members when they are going to the doctor and making sure that we ask
01:54those questions of our health care practitioners that they can't ask for themselves and some of that of
02:01what I'm hoping that we can talk more about is one of those topics is clinical trials and how are clinical
02:08trials being presented to communities that for our communities and all communities and how do we make
02:15sure that those clinical trials represent all of us. It's completely a decision between you your family and the
02:22practitioner but normalizing it I think it's just half the battle. Often these conversations are coming
02:27up when there's a crisis that's when often people are looking for answers and they're thinking what else
02:32can I do instead of being proactive in their decision making and have it be one of many things that
02:37they're thinking about as far as part of their health care decisions in the families and for themselves.
02:42I think one of the reasons why there is a delay is you know stigma that occurs within health care you
02:51know it can be very dangerous and really keeps people silent where they feel that they have to
02:58become invisible and not comfortable with asking questions or asking the information that they need.
03:06personal story that I have with my father he was um in on the medical trend for being what later we
03:15found out to be prostate cancer but because of that stigma and the mistrust that he had experienced
03:22with his health care practitioners he was delaying care he was not going to see move forward to having
03:29an MRI but I was able to convince him that you know he had rights that were being protected and there was
03:37information that was available to ensure that those rights were protected and was able to help him to
03:44seek out the care that he needed and he was diagnosed with cancer but it was caught at an early stage where
03:51we were able to do something about it and so from helping my father that also extended to my aunts my cousins
04:01and my mother so now for that experience they are now willing to venture out and let's talk about
04:10health so that not only we understand what our health impacts are but for the generations that are
04:17coming behind us so that we know those different diseases and how do we protect them and so that
04:23they know what they need to do to be healthy. There could be too much trust in the in the physician
04:30the healthcare practitioner to the extent you're not asking questions you're not challenging them
04:35you're just kind of receiving the information so you see some of those generational differences and how
04:40you're receiving interacting with the physicians. I think it's kind of getting back to this core
04:45fundamental of information as power to the point of even having conversations around family history
04:55family risk you may be dealing with x or y but meanwhile your parents could give you a window of
05:02insight into how this has played out within your family lineage and so that information is something
05:09you take back to your provider that could even help them inform potentially what are the right courses of
05:15action for you leaning on this notion of information is key this is where i get worried about misinformation
05:23and disinformation but a lot of times you're also going to the web right and so having the ability to
05:29know and to filter to know what is accurate versus not is challenging and sometimes i worry within certain
05:37communities too as well that information can spread like wildfire so what do you all hope for in terms
05:45of healthcare in the next five years what are you looking for as far as some certain advancements or
05:51progress that we can be making in the next five years so i'm excited about once again the science
05:58and how far we can take the science but i know as we take the science far the question is also how do we
06:05ensure that it's accessible and so what we do in that space to support patients to support communities
06:15to empower them with information and in my world i look at things from a digital technology lens and how
06:21do i leverage that to bring that science and that information in a way that really allows people
06:30to navigate and to operate from a place of empowerment so that you really truly are making the right
06:36healthcare choices for you and your family so access is key it's important and i truly hope that in the
06:44next five years we can truly broadly make care more accessible to anyone and everyone that needs it i am
06:51looking at five years where clinical trials is normalized it's not a myth it's not something
07:00pie in the sky but it is accessible for all communities and where in those communities we have
07:08representation for all race ethnicity age gender sex and even disabilities to making sure
07:18that our clinical trials are really and truly representative and not only accessible but also
07:26having access to the information so you know we've had a full conversation it has been enlightening
07:33and hopeful that as we continue on this journey that we'll even see a lot of what we talked about
07:39here today come to fruition thank you i agree i learned from both of you so thank you thank you i i do think
07:47the future is bright and i'm excited what the future holds and i truly believe in that vision of a
07:53transformed healthcare system and excited about all of what we can do to help bring that vision and future
08:00to life representation starts with participation so let's help shape the future of clinical research
08:09together learn the facts and advocate for yourself and those coming after you so let's keep talking
08:16because our health and the health of our loved ones is too important for us to stay silent thanks for
08:23joining me thank you for having us thank you
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