00:00is imperfecta bimariya hudyo ke bimariya aisa daikha ki iske ndar jo bones hothi
00:05ha bachyo ki wo brittle bones hothi hain woh thori si bhi chot legne se tool chaatii
00:09hain aur is bimari ka joh prevalence dekha gaya woh labbaq one in twenty thousand dekha
00:13gaya joki relatively thoda sa jada hain to is bimari ke anndar abhi hamaray paas labbaq
00:20jab se department of medical mediatrix shura hai tab tak labbaq 8 patient a chukye
00:23in joh hamaray haa pere treatment le raha hai is bimari ki treatment treatment me
00:27bisphosphonate karke ham loge ek dawaai use karte joh bisphosphonate dawa use karte
00:31usse dekha gaya ki ki joh future fracture ki sambhaavna hai woh kaafi kam ujati hai
00:35toh yaha par eek important e ki jise eek patient aya ta hamaray paas usko 8 baar fractures
00:40ho chukye hai usko halki si chot leghti fracture ho jate jab se ham nahi dawaai shura
00:44kariye uske baad se usko abhi tak koji bhi fracture nahi hoa hai lagbat 6 months lagbat 5
00:50se 6 mene ho gaya jis mene ko koji bhi fracture nahi hoa hai toh is bimari ke anndar
00:54yo, yeek genetic bimari hai jis me mother of father donno carrier ho sakti hain aur
00:58jab woh bacha pada karte tab un bacho mein 25% sambhaavna ho sakti hai ki is tari ki
01:23band can also be able to see the most severe variety of children in the face of the mother's
01:28pain.
01:29In the cases, when children come out and come out, they can see the fractures.
01:35The main function is the fractures, deformity and the eye of our sclera is a little blueish.
01:42This is the main function.
01:43This is the use of bisphosphonate.
01:45This is the name of Zolidronate.
01:47This is the use of 500 to 1500 rupees.
01:51This is the use of 6 months.
01:54If you see, it's about 2-3 thousand rupees.
01:57This is the use of salver.
02:00This is the use of salver.
02:02This is the use of salver.
02:04The national policy for rare disease in 2021, which the comment of India has been mentioned.
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