For columnist Alyssa Silva, control has always been her safety net. But in reality, it doesn't protect her; it exhausts her.

Columnist Sherry Toh can't fathom generative AI replacing human empathy when it comes to caregiving for people with rare diseases.

A study found mutations that cause SMA may trigger problems with bone cell communication, suggesting a potential new way to treat weak bones.

Most children SMA type 1 can survive an episode of pARDS, a life-threatening respiratory failure, under standard protocols, ...

Home healthcare requires adaptability, writes columnist Ari Anderson, who has relied on home health nurses for decades.

When columnist Connie Chandler tackles an art project, it becomes a creative collaboration thanks to her supportive team of ...

SMA patients may have subtle abnormalities in eye movements, likely caused by changes in the brain rather than muscle ...

The change of seasons brings colder weather, meaning columnist Connie Chandler must seek to adapt to her changing physical ...

Being a wheelchair user has its drawbacks, says columnist Kevin Schaefer, but he's also found many benefits to having a ...

Columnist Helen Baldwin describes how Halloween lost its mojo for her after her baby boy was diagnosed with SMA in 1997.

Columnist Halsey Blocher has a weird experience reminiscent of an Edgar Allan Poe tale involving things that go beep in the night.

For columnist Alyssa Silva, slowing down during the winter months isn't always easy, but it's necessary to protect her health.